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Rob Longrigg

Please click on the sections below to browse individual stories.

Waiting for a transplant
>Victoria Tremlett
Victoria has end-stage cystic fibrosis and needs new lungs

>Rachael Wakefield
Rachael's lung disease has left her urgently needing a double lung transplant

>Charlotte Newman
Charlotte's father has been listed for a heart transplant since February 2008

>Jake Hubbard
Suffering from CF, Jake desperately needs a double lung transplant

Lives lost waiting
>Gary Torrance
Gary died in January 2005 aged 23 years after a 14-month wait for a double lung transplant

>Lewis Prior
Lewis ran out of time four months short of his third birthday, whilst waiting for a new heart

>Oliver Faulkner
Oliver died waiting for a kidney transplant.

>Mary Hand
Mary died waiting for a double lung transplant

>Richard Grannell
Richard waited three years for a double lung transplant that never came

>Samantha Webb-Jones
Sam was only 22 years old when she died waiting for new lungs

>Ubaid Ali
Ubaid needed a liver and small bowel transplant

>Kevin Harvard
Keven died after waiting 20 months for a liver and small bowel transplant

>Helen Miller
Helen needed a lung transplant

Recipient of a transplant
>Lucy Pearson
Lucy received a new heart in 2006 aged 6 years

>William Milne
William had a small bowel transplant at 5 years old

>Bethany Salmon
Bethany received a new liver

>Gabriela Filarowski
At only 16 months old, Gabriela received a new heart

>John McCarthy
After a three year wait, John received a donor kidney

>Molly Smith
Molly had a multiple transplant of small bowel, liver and pancreas aged 16

>Paul Kirsop
Paul waited 20 months for a double lung transplant

>Rob Longrigg
Rob received his double lung transplant in October 2003

Giving the gift of life
>Family of Marilyn Wilson
Marilyn's family made the gift of life after she tragically died suddenly aged 47

>Family of George Higginson
George was knocked off his bicycle aged 10

>Family of Anthony Donkin
Anthony died after a traffic accident in 2002, aged 20. Anthony wanted to donate his organs in the event of his death
Rob Longrigg is 32 years old. He was born with Cystic Fibrosis and received a double lung transplant at Harefield Hospital, Middlesex in October 2003.

Prior to my life-saving double lung transplant, I was in hospital more than I was at home, on 24 hour oxygen therapy and confined to a wheelchair. But even though my body was failing me I had to keep mentally strong. My belief in getting a transplant kept me going. I was willing 'The Call' to happen, and on the night of Wednesday 29th October 2003, it did.

I was in hospital at the time and I collapsed when I got the call. I got in the ambulance and met my family at Harefield Hospital where full tests were carried out before a period of waiting ensued until I got the final ok for my operation.

That was the most surreal experience of my life. I made phone calls to friends and family to tell them the news. It was an emotional time but the situation was now totally out of my control. After about 6 hours, the transplant co-ordinator came in and said "Let's roll, it’s happening!!" Then that was it...just me, God and the surgeons.

Two days later I woke up in Intensive Care and I couldn't really focus on what had actually happened. I was still heavily medicated but I had an underlying feeling of joy, gratitude and relief. My very first breath was like no other I had ever taken. There was no tightness, no wheeze and no cough…just a weird feeling of being able to breathe deeply. It felt very unusual and alien to me. Realising that this was how it felt to breathe normally and healthily was a very emotional sensation.

Week by week I became stronger, regaining my appetite, amazed by my increased senses of smell and taste. I even began to look forward to my twice daily exercise sessions with the physiotherapists. After a very difficult 5 weeks I returned back home, ready to start living my life again… the life that my donor and their family had given me back.

I am only too aware of how fortunate I am to be in this position and for me each day is a blessing. I have been given the opportunity of a second chance at life that precious few get. I have gone from a terminally/chronically ill person not being able to look past the next day, to being healthy and able to plan for a future. I have been given a chance to LIVE my life again, to do all the things I dreamt of, and to me that is the most special part of what I have been through.

On 6th August 2005 I took part in the London Triathlon which consisted of a 750 metre swim, a 20 km bike ride and a 5km run. I trained six days a week in the lead-up to the event and I finished it in 2 hours 30 minutes. For me this was an affirmation of how dramatically my life had changed and I now intend to do one challenge event each year to honour and respect the memory of my donor.

Thanks to their gift of life, I am able to do things that I could never have imagined possible a few short years ago. I have found true love and Mel and I got married at the beginning of 2008. I am enjoying life more than I ever have done and I now have a whole new future to look forward to. I can never repay the debt of gratitude to them and their family.